Hello and WELCOME BACK to my page.
Happy Halloween everyone, hope that your having a great day and have been having a wonderful Wednesday!
I want to say to all the victims of Hurrican Sandys wrath that you are in my thoughts and prayers. I am saddened by all the damage, loss and death. I hope that everyone watching will also keep them in your thoughts.
So in my last blog, I told you guys about how I went to the ER and in this one I want to talk to you about the follow up appointment with my home OBGYN. I want to say that Thomasville OBGYN is the absolute best! The doctors there made me feel more comfortable, more hope and more happiness and without them I may have not got to feel the joys of my pregnancy.
So I went to the OBGYN the next day and signed in and waited. Pregnant women all around and I think hmm... I wonder if anyone else in here is scared to death of today's appointment? I am shaking a little, my nerves have always been bad but now I am beating myself up about it. STOP Samantha, I say in my head. "You know its bad for the baby..." I continue this until my name is called and I finally feel like I am going to have some answers. If I could count the times that I had been dead wrong in my pregnancy it wouldn't be possible to use my fingers. I hated the shaky feeling I had but was enlightened when I went in and vitals and blood pressure checked out. Oddly enough I lost eight pounds and my nurse was warning me losing too much could cause problems; but that it was normal to lose some weight. I thought that the decrease may have something to do with the sickness I had only a few days earlier.
I was put into th ultrasound room and awaited my answers... the tech came in and asked me to explain to her why I was here. I told her everything the doctor had said to me and she just shook her head and with a light airy laugh she explained that ER doctors are rushed and usually don't have time to really assess any "problems" so that not to worry everything was probably okay. As she prepped me for the ultrasound we talked about how I had been eating and my weight loss. She was in the middle of cascading the reader across my belly when her face lost her smile. She became almost distant as if talking to me anymore would cause more problems. I now know this is in case she was wrong that she would have gotten into trouble. She looked at the screen back at me and said I am so sorry I said that before your ultrasound, there is something quite wrong, I need to go get the doctor.
She went and informed the doctor of the ultrasound and came back and proceeded to print me plenty of pictures of my beautiful son. She asked me if I wanted to know the sex of the baby and I said I better now, Matt isn't here and he might kill me. She said okay and I begin to ask a million and five questions. All she said to me was that it looked like Cystic Hygroma and the doctor would explain.
I waited for about 30 minutes and the doctor came in and immediately hugged me before going into his "update" He said he was sorry to inform me but the baby looked to have several problems and he was sorry they had not noticed anything at my 6 week ultrasound but it was more likely that the baby had developed them sometime within the last 7 weeks. I waited for him to get down to the real news and when he did I was shocked to hear things like "genetic chromosomal disorders" "cystic hygroma" "hydrops" "turners syndrome" and many other words I had not yet let digest. He wanted me to see a specialist and they would determine further what could be done if anything.
For those of you who don't know what cystic hygroma is, it is a mass of cysts that build up on the baby's neck and can continue down the spinal column. It is where the baby's lympthaic system is immature and instead of sending the fluids through the body the way it is supposed to happen it becomes small and larger collections of fluid.
I did a lot of research as I was told not to when I left the doctor informed me that the internet was a scary place to look at things like this and I should wait to hear it from a specialist who could inform me correctly. I did not have the patience for this however and looked up a few "key terms" to help my growing curiosity.
I will continue the story... next week. Hope you are enjoying my blog... I know it can be hard for some of you and this is why I share my story. I want everyone who is looking to understand and looking for some guidance to have that.
On top of my story I want to tell you how I have been lately. I have felt horrible, just down and out. I don't know what to do. It is like I am in a dark place and cannot get out of it. I just want to wake up and this all be a dream... I know that I won't and I have to keep pushing. But for those of you out there that have went through this you know what I mean... the pain, the spiraling up and down and the days you feel like youll never smile again. For those of you just starting to live this nightmare, know that the grieving process is normal. There will be bad times and good times and all the in between. We will make it through this, and we can do it together!
Today is no exception, I wanted so badly to dress Bentley up for Halloween, I was so excited he would only be a few months old for his first Halloween, he wouldn't remember it but I would... now I just feel empty. I want to hide away and not have to think about anything. Holidays seem like they will be like this for the rest of my life. Plans made, and then destroyed... the hurt will always be there and I wish for one second all of us going through this, mothers and fathers that it didn't have to be this way. We deserved our babies... that's my final thought. Sorry so long.